Pagets Disease Of The Nipple

Pagets disease of the nipple, was named after the scientist Sir James Paget. It is a uncommon type of breast cancer, that mainly forms on and around your nipple. Women who have disease of the nipple, are often found to have underlying breast cancer.

This breast disease, and also inflammatory breast cancer, are types of breast cancer that can display physical signs that may be over looked, such as a rash or swelling. Pagets disease can look like a regular pimple, sore, insect bite, or uninteresting inflammation or infection, which can easily lead to delays in breast cancer detection.

A clinical breast exam, biopsy and discharge sample would be required for further consideration of Pagets disease. There may or may not be an associated breast lump, but this disease of the breast normally indicates breast cancer.

It all comes back to knowing what is normal for you and doing regular breast examination. By checking regularly, you know what is going on with your body. If you do your regular breast self exam, congratulations! I salute you!

Signs Of Pagets Disease

  • Nipple eczema
  • Inverted nipple
  • Breast rash
  • Nipple discharge
  • Nipple crustiness
  • Itching
  • Sensitivity
  • Change in nipple area colour
  • Burning

If you notice that you have any of these breast disease signs, or any other unusual or new symptoms, please seek medical assistance and insist that Paget's disease be considered. If you feel you are not being taken seriously, or are uncomfortable with your doctor, please get a second opinion elsewhere. It is your body and you have every right to feel at ease with the professionals you talk to, and you have the right to ask questions and be taken seriously.

Do you have Pagets Disease and would like to tell abour your experiences?
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Pagets Disease Emailed Message

You might be like myself, and received an email mentioning Pagets disease. I have decided to place below, in the hope that it may hit home and help raise awareness. So, here it is.

Emailed Message

A rare kind of breast cancer has been found. A lady developed a rash on her breast, similar to that of young mothers who are nursing. Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass. A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation.

After about 9 months of intense treatment, she was given a clean bill of health. She had one year of living each day to its fullest. Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died.

She left this message to be delivered to women everywhere:

"Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible. Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was.

My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.

Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. (Mine started out as a single red pimple on the aureole. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.)

What are the symptoms?

1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)

2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

3. Usually only one nipple is effected.

How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on.

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin.

If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread... "

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Do you have this disease and would like to tell about your experiences?
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